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maddie's daughter |
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| Thursday, 07 February 2008 | ||||
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My daughter is 22 and has suffered migraines since she was 8 years old. Sometimes they were more often, sometimes she had periods without. When she was 10 she had a migraine and became totally paralysed. No speech. Only her eyes could move. She went on medication that she managed to stop when 16. Twice at university she had full paralysis again and went back on meds. She came off them last year. This year she has achieved her dream to work full time with horses. But now the migraines and paralysis have started again. She is very dilligent at avoiding her triggers, but the long hours with the horses has meant she gets tired at times. She is on her way home to me. Doctors have told her that she has a very rare conditon. Only 2% of migraine sufferers have familial hemiplegic migraine. This is genetic and inherited. I was adopted so had no idea of my family history before I had her. Hemiplegic means paralysis of one side and usually slurred speech at worst. My daughter becomes totally paralysed with no speech at all. She has been told there is pemanent damage to her trigeminal nerve and she is at risk of a stroke at any time. The docors said if she sleeps someone should check her every hour. I found out yesterday and went to pieces. I want to thank everyone on here who listened as I made little sense and who have been praying for my daughter ever since. I know this isn't really a blog, but i don't know when I'll be on or if I'll be able to respond individually to people. I am so grateful for your support. I'm going to use the next 2 days to sleep when I can and get myself calm for her coming home. I have doctor and neurologist apts. to make for next week. I'll blog again when I can to update you. Sorry, I've started shaking and waffling on. I'll go. Thank you all and I will be thinking of you too. As ceejay said to me - where there's life there's hope. We are survivors. - |  Add as favourites (29) | - |  Quote this article on your site | - | Views: 1427 | - | Print | - | E-mail
1. 07-02-2008 14:47 2. 07-02-2008 14:52 We are here -- and we love you -- and your daughter. You just do what you need to do -- and know that you are being held in all our hearts. IP: 68.35.232.111 Registered 3. 07-02-2008 15:31 Im very soory to hear that..I to have suffferd with migrane for a while now..Your daughter is just as strong as you are..lean on eachother and you will find comfort here no matter what.. Best of luck to you guys. You must keep holding on.=) IP: 74.61.209.166 Registered 4. 07-02-2008 16:20 Maddie, don't ever apologize to us for rambling on. This is exactly what we are here for, to support you in any way that we can and to be here for you. I am praying for you just as much as your daughter. I am praying for both of you. Thank you for sharing this information with us and hopefully we can really help you to deal with many of the emotions you are going through. We obviously understand if we do not hear from you for days possibly weeks at a time because we know that you are busy. You're always in my heart and you are one of the most special friend to me. There is hope. Try to keep smiling, and hold it together for her, I know it must be insufferably hard. Love you!!! IP: 149.152.191.250 Registered 5. 07-02-2008 16:24 6. 07-02-2008 22:49 7. 08-02-2008 06:57 Dear maddie, I will be thinking of both of you. Ceejay is absolutely correct, where there is life there is hope. IP: 124.179.150.83 Registered Only registered users can write comments. Powered by AkoComment Tweaked Special Edition v.1.4.6 |
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